ALS United

https://www.alsunited.org/https://www.alsunited.org/our-teaminfo@alsunited.org

About the Organization

ALS United is a national nonprofit network dedicated to supporting individuals and families affected by amyotrophic lateral sclerosis (ALS) through advocacy, patient services, research funding, and public awareness initiatives. The organization works to advance treatments and ultimately find a cure for ALS while improving quality of life for those living with the disease.

Policy Goals

Increased federal funding for ALS research, expanded access to innovative and experimental treatments, improved healthcare coverage and disability benefits for ALS patients, caregiver support policies, and public health initiatives related to neurodegenerative diseases.

Funding

Primarily funded through individual donations, charitable fundraising events, corporate sponsorships, and foundation grants.

Affiliates

Independent ALS United regional chapters and partner research institutions focused on neurodegenerative disease research.

Legal Structure

Non-profit organization

Opposing Bills

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