Muscular Dystrophy Association

https://www.mda.org/https://www.mda.org/about-mda/contact-usResourceCenter@mdausa.org

About the Organization

The Muscular Dystrophy Association (MDA) is a national nonprofit organization dedicated to empowering people living with muscular dystrophy, ALS, and related neuromuscular diseases through research, care, advocacy, and education. Its mission is to accelerate research breakthroughs, advance care, and advocate for policies that improve quality of life and access to treatment for individuals and families affected by neuromuscular disorders.

Policy Goals

Biomedical research funding, access to health care and specialty services, insurance coverage protections, disability rights, federal research appropriations, newborn screening programs, and policies supporting individuals living with neuromuscular diseases

Funding

Charitable donations from individuals, corporate partnerships, foundation grants, fundraising events, and planned giving

Affiliates

MDA Care Centers network, MDA Clinical & Scientific Advisory Committee, corporate sponsors, and partnerships with medical research institutions

Legal Structure

Non-profit organization

Opposing Bills

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